Browsing by Author "Ngula, Anna Kaukowe"

Now showing 1 - 4 of 4
  • Thumbnail Image
    Item
    Access to information for people with albinism: Issues, challenges and resolutions
    (2021) Ngula, Anna Kaukowe; Bitso, Connie
    Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and eyes. The difference in appearance between pigmented people and those with albinism is often the object of inaccurate and harmful beliefs about the condition. These beliefs are fuelled by myths, lack of knowledge and understanding. In recent years, it has cost people with albinism (PWA) severely with the mutilation of their body parts and killings in some countries in Africa. PWA challenges include discrimination, stigmatisation, derogative naming, skin cancer, visual impairment, rejection, and social exclusion in fundamentals such as healthcare, education, and employment. Also, access to information remains a challenge to PWA due to poor eyesight and myths associated with the condition, making it difficult for society to openly discuss albinism issues and share information with those in need. The study explored PWA’s challenges, parents of children with albinism (CWA) and organisations that serve PWA in Khomas region Namibia when accessing information. The researchers adopted the interpretivism paradigm and employed a qualitative approach. Data was collected through individual face to face interviews with all the participants. Sixteen participants, both male and female, took part in the study. The fi ndings show that PWA encounter problems when accessing information. These include lack of awareness of information sources coupled with poor eyesight for PWA and reading of information in small fonts that are not provided in alternative formats. The immediate sustainable resolution is delivering inclusive information services that avail health information in multimedia formats to accommodate people with challenges such as visual impairments and other forms of impairments. Although far-fetched, a change in mind-set and negative attitude to PWA, especially in Africa, is critical.
  • Thumbnail Image
    Item
    Barrier on access to archives by people with disabilities and inclusive solutions: A review of literature
    (2021) Mosweu, Olefhile; Ngula, Anna Kaukowe
    Access to archives by members of the public is essential in promoting democracy, accountability, good governance and civic engagement. It is normally provided for by archival legislation. It is also vital in fostering an informed society. The International Council on Archives’ (ICA) Principles on Access to Archives further also nurtures access to archives by all, regardless of their physical health, race and religious affiliation, just to cite a few. However, literature has shown that people with disabilities (PWDs) are denied access to archives due to existing barriers. These include unfriendly building infrastructure and challenges related to physical disabilities, visual impairment, and hearing impairment or other physical coordination. This study is based on a review of literature, and it seeks to identify barriers on access to archives by PWDs and inclusive solutions geared towards facilitating access to archives. Qualitative in terms of the research approach, the study uses the ICA Principles on Access to Archives as a theoretical lens to identify barriers on access to archives by People with Disabilities ((PWDs) and to determine the inclusive solutions required to promote access to archives by PWDs.
  • No Thumbnail Available
    Item
    The information needs of people with albinism in Khomas region, Namibia
    (2018) Ngula, Anna Kaukowe
    The dissertation is a report of an investigation of the information needs of people with albinism in Khomas region, Namibia. The investigation aims to ascertain the information needs of people with albinism (PWA), including the kind of information needs they have. It also seeks to establish the mechanisms used by PWA to seek information and to determine who initiates their information-seeking activities. Furthermore, the study identifies the challenges PWA in Khomas region face on a daily basis when seeking information and recommends information services that could be suitable for PWA in Khomas region. For its theoretical framework, the study applies Moore (2002) and Wilson’s (1996) model of information behaviour. It is situated within the interpretivism paradigm following a qualitative approach. The research design is that of a case study with aspects of autoethnography resulting from the researcher’s personal memory of her lived experiences of albinism as a mother of two children with albinism. Face-to-face interviews were conducted with sixteen people with albinism; six parents of children with albinism (CWA); and two key informants from associations dealing with PWA in Namibia. The findings reveal that PWA have information needs related to their condition, specifically skin and eye care, as well as other basic needs, such as shelter, employment opportunities, education prospects and the process of their acquisition of identity and travel documents. The study revealed that the internet (especially Google), the radio and television, healthcare professionals and Support in Namibia of Albinism Sufferers Requiring Assistance (SINASRA) and Namibia Albino Association Trust (NAAT) are some of the sources and mechanisms used by participants when searching for information. The organisational participants revealed that they provide a range of services to PWA, including information about skin care and protective clothing, as well as applications for disability grants. PWA who participated in the study indicated that they encounter problems when accessing information. These include the long distances between information seekers and providers, time constraints and the cost associated with accessing information. Language was identified as a major barrier to information access because most of the content is in English. Lack of awareness of information sources coupled with poor eyesight for PWA the reading of information in small fonts that is not provided in alternative formats a glaring challenge. The study concluded that information about albinism is critical not only for PWA, but also to an African society that often subjects PWA to grievous harm, simply because it still holds myths and stigma about albinism. Therefore, the study recommends that it is crucial to provide information to PWA, including their family members through platforms such as open days, sensitisation meetings, and the creation of WhatsApp groups. These interventions should also be directed at society at large in order to create a sense of belonging and get rid of isolation suffered by PWA. The study also recommends that an information booklet be developed by the ministry of health and social services. This booklet should contain information on different types of disabilities that can affect unborn children, in order to prepare the parents.
  • Thumbnail Image
    Item
    The power of information and coping with albinism
    (IFLA Journal, 2022) Ngula, Anna Kaukowe
    This article aims to ascertain the purposes for which the author needed information when her children with albinism were born, as well as explore the mechanisms she used to find information and the challenges she experienced when searching for information. An autoethnography method is used to share her lived experience of albinism, and the data has been collected through the author’s personal memory by recalling events that happened when she gave birth to her daughter in 2013 and her son in 2016. Information played a crucial role in helping the author to understand albinism better and to deal with her predicament. As a librarian and the mother of children with albinism, the author explored different mechanisms to find information. The Internet was the main source of information, as well as organisations such as Support in Namibia of Albinism Sufferers Requiring Assistance and the Namibia Albino Association Trust, which deal with the plight of people with albinism in the country.